SSO development priorities 2019
We currently have 51 SSO members of WSO; and of these members seven are brand new to WSO this year: Bulgaria Heart for Heart Foundation, Stroke Foundation of Jamaica, Seychelles Stroke Foundation, Strokeföreningen Malmö Sweden, Joel Samson Ruvugo Group Tanzania, Tanzania Heart Club, National Stroke Aid Zambia.
Our SSO membership continues to contribute to blogs about their lived experience of stroke, stroke prevention awareness and long term support.
The SSO Committee is working with the World Stroke Campaign on the development of the 2019 Campaign. As well as coordinating the input of stroke survivor stories, we will be asking our SSO members to help us reach new audiences and share details of their prevention focused resources – more details to follow!
At the 2018 World Stroke Congress there were sessions on SSOs improving systems of care, engaging people with lived experience, and responding to ‘hidden’ effects of stroke. Recordings of some of these sessions are now available on the World Stroke Academy as a learning resource.
Ground breaking news from our SSO membership
The Japan Stroke Association promotes and supports long term care for people affected by stroke. Although this stroke support organisation only has one full time staff member and relies on volunteers, it delivers activities across the 47 prefectures of Japan, which include a helpline and peer support groups.
The Japan Stroke Association has been involved in the development of Japan's new Stroke and Cardiovascular Disease Control Act. The Act aims to ensure a comprehensive and systematic response to cardiovascular diseases across the country. The Government, healthcare professionals and patient organisations such as the Japan Stroke Association, are now working on implementation plans for each health condition.
The manuscript “Stroke and Cardiovascular Disease Control Act Japan: Comprehensive nationwide approach for prevention, treatment and patient support” has been submitted to the International Journal of Stroke for consideration.
Achieving our vision of a life free from stroke is a task that WSO cannot achieve alone. We are committed to building our partnerships at the global, regional and national level to scale up and deliver improvements in prevention, treatment and support to reduce the burden of stroke.